Diagnosis and Disclosure


Background

After changes in the patient’s cognitive function have been suspected with a positive  initial brief cognitive evaluation/screening, it becomes imperative that the primary care physician seeks to rule out other potential causes in establishing a diagnosis of dementia. This would include a dementia workup including labs, structural head imaging such as an MRI.

The physician would evaluate the workup and could include further cognitive assessments through use of tools such as a mini–mental status examination (MMSE), Montreal Cognitive Assessment (MoCA), or other tools as preferred or a referral to a specialist.  Based on the workup and assessments, the physician would communicate the cognitive impairment may be a dementia.  At this point, MD weighs all the evidence and decides what type of dementia this may be and what stage they are likely in. Staging and type of dementia will help guide appropriate treatment and management strategies.  

Once the diagnosis of dementia is confirmed, the patients need to be notified and the expected prognosis, what to expect from the disease, need for supervision, how to handle driving, legal and financial matters (or whom to refer to) and how to get social support for caregivers (day care, support groups, referrals for in home help or good assisted living or ECFs, etc.) need to be addressed.



Diagnosis and Disclosure Tools

The following is a list of tools and resources that you may find helpful:

Algorithm Guiding the Differential Diagnosis of Dementia


AD Medications Fact Sheet


Driving Information and Contract


Family or Caregiver Questionnaire


Patient Questionnaire


GP Management Plan /Team Care Arrangement – Dementia


Sample Dementia Care Plan


Clinical Dementia Rating (CDR)


Diagnosis and Disclosure Resources

Family Conversations About Alzheimer’s Disease, Dementia & Driving


Managing Dementia Across the Continuum


AD Resources


After a Diagnosis


Disclosing a Diagnosis of Dementia


Disclosure of an Alzheimer's disease diagnosis


I Have Alzheimer's Disease


AA: LIVING WELL


TAKING ACTION


Communicating a diagnosis of dementia